Category Archives: Medical Conditions

Save Money For Your Disabled Child With ABLE United

Disabled Florida Residents Now Have A Way To Save Money Without Penalty

ABLE United is here to help relieve some of the stress so you can focus on more of the other parts of life. Being a parent of a disabled child is hard, very hard. There are so many moving paths and parts going on all at once that can be quite overwhelming. 

 This is a sponsored post brought to you by ABLE United to show you a way to save tax-free money for disabled Florida residents. Please check out my affiliate and sponsors disclosure if you have any questions.

One of the most stressful parts is money! Paying for the day to day expenses creates extreme hardships on parents. Whether they are needing to pay expenses today, tomorrow or five years from now, it is always on their mind, hovering that dark cloud over their heads. 

Did you know there is now a way for you to save money for future expenses whether they are living or medical expenses? You can now keep yourself under the “umbrella” and you will not lose your benefits such as SSI. 

As an added bonus friends and family can also contribute to help you save the money too! 

Who Is ABLE United

ABLE United stands for Achieving A Better Life Experience – A program that allows disabled Florida residents to save up to $14,000 annually, tax-free; without affecting assistance programs such as SSI/SSDI and Medicaid.  

Made possible after the passing of Stephen Beck JR; The ABLE Act was signed into law nationally December 19, 2014, and later in Florida May 2015. 

The ABLE Act amended section 529 of the Internal Revenue Code that allows for tax-free savings accounts for people with qualified disabilities. 

 Only 15 Minutes To Your Child’s ABLE United Savings And Investment Account Today! *Annual $30 Fee Waived Until 2018!

Who Can Eligible For An ABLE United Savings And Investment Account

Disabled Florida residents can open their account in fifteen minutes. The account is owned by the disabled person and authorized adult such as a parent, guardian or power of attorney can manage the account. Anyone can open the account for the disabled individual. 

  1. Disability Must Have Been Diagnosed By Age 26 Years Old
  2. Florida Resident
  3. Qualified Disability

Why Your Disabled Child Should Have An ABLE United Savings Account

With seven different investment options, there are lots of ways to help secure money for the disabled child’s expenses. When you have a disabled child medical expenses will add up pretty quickly and you never know what their financial situation will be in the future. 

When you have a disabled child medical expenses will add up pretty quickly and you never know what their financial situation will be in the future. 

A medical bill, medical equipment, a nurses aid or even handicapped housing can easily surpass $5,000.  

With an ABLE United account whenever those situations come up, you wouldn’t have to be scrambling to gather funds for things that your child needs. 

Get Detailed Answers To Frequently Asked Questions on ABLE United’s FAQ Page

Some Expenses That Parents Need To Handle For Their Disabled Kids Are

  • Medicines
  • Therapy
  • Medical Equipment
  • Assistant Aid and Therapists 
  • Housing and Accommodations
  • Education and Training

And so many other things they come across in order to get their daily needs met. Having the burden and stress of money can make the daily care of a disabled child almost impossible…. Yet parents of disabled children get through the day, every day, without a break or end in sight. 

These Children Have Heroic Parents That Go Through Things That Test Their Human Limits. 

Some parents have some luck and help from family and friends and now those friends and family can help even more without the worry of that financial help negatively affecting the child’s benefits! 

If ever you are looking for a gift idea, contributing to a disabled child’s ABLE United account is a huge gift. 

A Few Other Great Reasons To Open An ABLE United Savings Account For A Disabled Child

  • Tax Free
  • Save Up To $14,000 Annually
  • Use Funds Without Fees
  • No Authorization Needed To Use Funds

 In 15 Minutes Your Child’s ABLE United Savings And Investment Account Can Be Opened! 

Thank You, ABLE United for coming to our rescue to help ease the stress and worry of how we will be able and capable of taking care of the needs and expenses of our disabled children. 

Kallista’s Needs Help Finding a Name with Cure For Her Condition

Imagine Not Being Able To Nourish Your Child With Food Or Not Knowing What Her Condition Is

What ends of the earth would you go to in order to save your child’s life?

The struggle of having a child that is sick is hard for anyone. The physical, emotional and mental demands of all the tasks that go along with the day-to-day care can be brutal.

Kallista needs help finding a cure for her medical condition plus needs access to basic life saving needs, such as food.
#prayforKallista She can only tolerate dairy and soy free Breast-Milk and insurance refuses to help.

What happens when you have the added situation of not knowing what your child’s condition is or how to help her? What about if you already lost a child that possibly has the same condition?

How does one cope with it a second time around?

Her older sister died 6 years ago from what looks like the same symptoms. 

Imagine losing your first daughter and then your second goes through the same thing and no one wants to help;( This is a short part of our story.

This is the story of Kallista and Her Family

Who is Kallista?

Kallista is a beautiful little toddler who arrived with some pretty little smiles and plenty of baby gibber to tell you about. When she isn’t running back and forth to various doctors or going through her therapy sessions she is busy trying to learn about and figure out the world around her.

What is Kallista’s typical routine on a day-to-day basis?
A day to day schedule for our family right now is pretty crazy! 
  • 6AM – Wake Up
Kallista must be accompanied at all times while on her tube so my oldest son and I have Kali duty. Which means to get her dressed and food ready. While the other person gets breakfast together, lunches made and everyone dressed and out of the door by 7AM
  • 7:30AM – We drive an hour to Phoenix for feeding therapy
  • 9AM – Feeding Therapy with myself and the 3 littlest kids. Caleb, Kallista and Blake. 
  • 10AM – Drive Back to drop Caleb off at school by 11AM
  • 11AM – 1PM – Nap-Time for Kallista. She will only nap if I am holding her. So lunch is made late or as easily as can be for Blake. I typically don’t eat. 
Some days we have feeding therapy at home or other doctors visits. 
  • 1PM – 3PM – Play-Time. Meaning I keep Kali and Blake entertained playing outside or reading. 
  • 3PM – Pick-Up kids from school
  • 3:30PM – 4PM – Wind down from school and snack time
  • 4PM – 6PM – Kallista is usually napping during this time in my arms
4PM – 5PM – Prepare dinner if Kallista is awake and willing to play with her older brother or we do something easy if she is having a bad day
  • 5PM – 6PM Dinner and clean up
 Kallista gets her medicine between 6PM – 7PM
  • 8PM – Bath time and bible reading to have kids in bed.

Prepare her milk and her nightly food to have her hooked up by 8. Bed time for Kallista is usually 8PM – 9PM depending on her day. I lay Kallista in her bed about 10 or whenever my husband gets home from work. 

Most days consist of many phone calls regarding authorizations or fighting with insurance just to get basic medical needs met. I also try to find time to share her story while she is sleeping. Says mama Jen.
How exhausted by this rigorous schedule did you feel? Let me tell you as a mom to children with various medical needs… It is physically, mentally and emotionally exhausting. It literally drains everything you have away from you. Many times you feel like this empty shell or even a real life zombie.  You literally survive off of adrenaline for the most part.
We Need Your Help To Share Kallista’s story! Get Doctors and the Insurance Company to Pay Attention! 

What Condition Is Kallista In

After several months, Kallista was diagnosed with several types of Eosinophilic Gastrointestinal Disorder.

Characterized by an abnormally higher number of eosinophils, a type of white blood cell, in different parts of the digestive track, EGID includes several conditions that can effect the digestive system in otherwise healthy infants and adults. There are four types of EGID based on where the eosinophils are found — the esophagus, stomach and small intestine, colon and blood and tissue.

Kallista has been diagnosed with all four types of EGID, mama Jen said.

The condition is often linked to a food allergen. Kallista is allergic to soy, corn, gluten and dairy so she can’t tolerate formula.

Picture Yourself Trying To Find Enough Breast-Milk To Keep Your Child Alive

[clicktotweet]Breastmilk Wanted For Baby Kallista, Her Life Depends On It. Medically She Cannot Have Anything Else.[/clicktotweet]

Mama Jen’s daughter is allergic to all food and only can feed her breast-milk. They are still looking for doctors to help find food for Kallista. She has failed every food tried including various formulas except breast-milk. If you want to donate dairy free milk please contact the milk bank we use at 817-810-0071.

Can You Help Donate Life Saving Dairy and Soy-Free Breast-Milk To Kallista

We are currently getting milk from Texas milk bank. However they frequently run low on dairy free milk. Donors would be a blessing. We have contact information for the milk bank. I used to nurse Kallista during the day. I pumped and nursed until her first birthday but decided my mental well being was more important than pumping. 

A mom and dad’s plea for your immediate help, support and attention to help Kallista and her doctors figure out what is making her sick, what is threatening her life and how they can attempt to cure her.

She is considered disabled and has state insurance. It is because of her state insurance that we are not able to see providers outside of Arizona. We are stuck here fighting with insurance to get answers and help.

A Mother’s Agony: Having to relive Allyssa’s life when Kallista was born was one of the hardest things I have ever been through. Everyday I thought she would die. Every day I was on my knees begging for God’s mercy to allow her to stay. There were so many times we ended the day with no food for the next and with God’s amazing hand he provided her milk. During her many hospital stays there are times I don’t eat because we don’t have the money.

You can help Kallista get to her appointments  and receive expensive but life saving breast-milk with a small donation here. With breast-milk costing roughly $4.00 per ounce and going through food trials, nourishing baby Kallista seems impossible. She gets at least thirty-four ounces per day, that is a hefty $136 per day!!

A Family’s Turmoil: Kallista’s life has been a whirlwind. Having little support and not enough money for my husband to be home, we have had to make really hard choices when it comes to what to do going forward. We spend $500+ a month just in gas to go to doctors appointments. My children’s lives in the beginning were staying at doctors visits and hospital stays. Not being able to be with mom and dad. Luckily my mom has helped as much as she can but besides her support we have been left to fight and support Kallista on our own. 

A Note From Dizzy Mama Marilyn to Mama Jen:

Kallista is most definitely in my prayers and I am sharing her story to reach more people. I have been through some of the things you have gone through. Trying to find answers. Trying to get doctors to spend a few more minutes with your child so they can find a solution. I too have spent countless hours on the phone with insurance companies and doctors offices just getting my boys medical needs met.

My boys don’t have what Kallista has, but I know what it is like when your child stops growing and is in failure to thrive. I know what it is like having a child that is allergic to both dairy and soy, with gluten intolerance’s. I know what it feels like when the doctor announces your child is no longer growing and that their brain has stopped growing.

With one child who was in failure to thrive from age one to age six, whose brain stopped growing at two and a half years old … I know what the whole thing is like. He couldn’t consume any types of foods and I was forced to stop breastfeeding and dry my milk up. Finding a milk that could sustain him and one that he could tolerate was tiresome. He had his first meal when he was three and a half years old, just six months after having surgery on his esophagus to correct it.

I wanted to give you a glimmer of hope. This same child is now twelve years old, has a very high IQ now, his brain began growing again when he was around five years old.

I really hope that Kallista has this same opportunity. Some more hope, his little brother stopped growing at age two and recently at the age of eight and a half shows signs of beginning to grow again. 

I am virtually holding your hand Mama Jen, helping you get through the red tape of simply feeding your child. No Child Should Ever Be Denied Food! I am sharing this heart wrenching story in an attempt to get Kallista some donor milk. Insurance should be picking up some or all of the costs involved with getting Kallista her food.

The health insurance is being completely neglectful. I want to help you find some respite relief, even if it is once a week for you to decompress a little. I am asking your local community to open up their time and to possibly volunteer cooking a few meals and ensuring that you Mama Jen have a meal to eat. I am asking local mama’s to help you with the children for example someone letting your older children carpool sometimes with them to school. Putting together some play-dates for the children too. It truly gets lonely for all the children involved and so do the parents, Mama Jen and Papa Smith, you too also need some breaks with other adults. I really hope that this message reaches all these Super Helpers so your family can get a few extra hands a month. Any local nursing Mama’s around, please help Kallista get some life saving food, donate some breast-milk if you possibly can. 

I hope we can raise our voices so loudly that we can raise more awareness for Kallista and her condition. Raise voices so she can get the full medical services she desperately needs for her survival. 

Watch for Kallista’s updates and if you can possibly help in any way, you can connect with Mama Jen through their Facebook page. If you can offer any type of support for Baby Kallista, even if just an ounce of milk, a local or even virtual support group for children with her same medical condition, a fresh hot meal for mama, sharing her story or a fun play-date I want to Thank You for helping. Please use my sharing buttons to share Baby Kallista’s story in as many places as you possibly can. 

[clicktotweet]We Are Holding Healing Hands Together To #prayforkallista[/clicktotweet]